Well...let me tell you something about China......waiting...waiting Na could'nt think of anything intelligent to say. The main reason for this blog entry is to talk seriously about my current medical condition known as SCA III or Machado-Joseph Disease. At this moment my head appears to be clearing up (Ataxia Patients refer to it as "a buzz" or "dizziness" that won't go away) I am watching TV without any glasses and i can walk short distances without support. This is all I expected from this treatment (all though I am going to continue to train myself to walk longer distances) i am not confident enough to drive during daylight-because of my random eye spasms. I see my neurologist in the next couple of days and I have a flurry of questions for him. Its not every day that an ataxian gets to talk to another ataxian while riding the stationary bike.
To sum it all up this is our last night here in Shenzhen. Thats why it may be a psycho-sematic response to treatment (I'm my own toughest critic) Pretty brutal eh? Im on the verge of passing out so I'm gonna rap it up here. We leave at 6:00am and its 11:30pm local time
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16 comments:
welcome back george!!!!!
could you please post another entry letting people know how you are feeling now: a few weeks later? people keep asking me and i am not sure what to say hon.
love, sal
Hey George,
Happy New Year's.
Hope you are settling in well at home. I am back in the U.S with my parents and my wife. We have decorated the house with classic Chinese New Year's banners aroudn the house with slogans like "Get Rich Quick", "May you make lots of green in the year of the pig" and "Communists make the best capitalists"
I will sit down and look at your videos today or tomorrow hopefully and try to make a patient experienc for you. Joe said that visually you had made a lot of progress so hopefully that is the case and we can get a good experience up for you. I will send you it for your approval before putting it up.
Thank you.
- Jon
hi i am Brina from tw
can we talk on msn ?
chunghantsai@hotmail.com
cuse i need some comment and improvent
i am SCA3 too
George, please let me know what treatments are available. My 2 step-daughters are SCA3 and SCA 2. I really want to help them, and we are willing to go to China if we have to. Thanks,
Lynda
George-
I would love to know how you are doing recently. I was diagnoised last year with SCA-3 and your story has given me hope! Also, have you been experiencing any side effects from the treatments? I truly wish all the best for you and your family and hope that you have continued success with your treatments. Thanks again!
Eric
George,
we are medical school students from Brazil, and we're doing a research on your condition (MJD). We'd like to know about the treatment you had in China. If possible, send us an e-mail to:
nat.treistman@gmail.com
albdutra@gmail.com
Thank you in advance,
Natália and Anna.
Dear Sir.
My Name Cho, I'm Korean. But, when I returned my country from overseas work, I found that my brain has some problem. My disease is movement disease from ataxia, i.e " Multiple Systemic Atrophy Pakinsonism "wroted in the paper issued by hospital.You really have many records for this disease? How you treated this disease? As far as I konw, There is no medicine for this disease up to know, there is only "Excise". And doctor emphercised me only "excise". Please let me know the what kind of "TRETMENT" what you had while you are in China. My e-mail address is "justinhcho@naver.com.
B. Regards,
I have SCA6. I'm aged 48, male, with 3 kids. Any news, good or bad, is appreciated.
Best, William.
Mr. Arruda,
I'm a reporter with the Globe and Mail newspaper and I saw your online profile on the Beike site. I'm working on a story about the trend of Canadians heading to China for these treatments. It's fascinating. I'd be very interested to know how your procedure went and how you're feeling today. Please call 416-585-5756 or email patrickwhite@globeandmail.com.
All best,
Patrick White
how are you doing in February of2008
Dear blogger,
We are a group of medical students at Imperial College undergoing a research project into Stem Cell Tourism, whereby patients seek stem cell therapy abroad. We have noted that you have either undergone this treatment yourself, or have expressed interest in it, by way of your blog.
We would like to gather the opinions of patients on stem cell therapy abroad, and whether sufficient information exists for patients who may also wish to consider it. We were wondering whether you would be so kind as to fill in the questionnaire below. We would also appreciate if you could forward the link onto any contact you may have who have had a similar experience. It shouldn’t take very long and will greatly help us.
If you have any problems filling in the questionnaire please let us know by emailing us at: aa16009@ic.ac.uk
Questionnaire link:
http://www.surveymonkey.com/s/G6PD2B8
Thank you.
DEAR George,
I would like to know how you are doing recently and have you been experiencing any side effects from the treatments? I was diagnoised with SCA-1, 10 years ago, i am 52 now.
Can we talk on msn ?
dahongruth@hotmail.com
As I'd like to talk to you get some advices.
I truly wish all the best for you and your family and hope you have continued success with your treatments.
Thanks again!
Have a nice day.
RUTH
George,
Can you please provide some updates? How is your condition now, some 4 years later?
Hi George,
Thank you for sharing your story. Do you have any updates four years after your treatment in China?
Hello George, My father is affected by this fatal sickness and i have witnessed the effects of this sickness first hand. I have see your profile on the china stem cell website and it got me thinking is it possible to go to china and get the treatment. My father has MJD ataxia type 3 same as yours. Can you give us some information please on about the treatment. my email address is haidarwabaa@yahoo.com
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